Seorang bayi di Fresno yang mengidap penyakit langka menentang segala rintangan


FRESNO, California (KFSN) — Hampir setahun yang lalu, Motion Information membawakan Anda kisah keluarga Lazarus.

Richard dan Kylie Lazaro baru saja menyambut si kembar Riker dan Bekim, namun Riker dilarikan ke unit perawatan intensif neonatal dan kemudian didiagnosis menderita atrofi otot tulang belakang (SMA).

Ia berhasil mendapatkan suntikan ZolgenSMA, pengobatan satu kali yang baru ada sejak tahun 2020.

Sejak itu, ia telah menunjukkan kemajuan, namun ini akan menjadi perjuangan seumur hidup yang memerlukan pengobatan, terapi fisik, dan janji temu dengan spesialis.

“Daftarnya sangat panjang sehingga ada empat hingga delapan janji temu dalam seminggu,” kata Richard Lazzaro.

Pikim sangat aktif, dia merangkak dan mulai berjalan.

Ryker sedikit tertinggal, tapi dia membuat kemajuan.

Dia mengeluarkan suara, dia bisa berguling, dan dia bisa menggerakkan lengannya.

“Masih banyak hal yang belum diketahui,” kata Lazaro. “Jadi, kami berusaha menghargai setiap momen yang kami bisa bersamanya.”

Salah satu momen berharga itu adalah pesta ulang tahun pertama si kembar.

Pasangan yang duduk di depan kami hari ini mengatakan bahwa mereka memiliki pandangan hidup yang berbeda dibandingkan tahun lalu.

“Saya tahu Tuhan sudah mengatasinya. Apapun yang terjadi, terjadi dan pada akhirnya, kami hanya ingin dia memiliki kualitas hidup yang baik dan saya tahu Tuhan akan menyediakannya,” kata Kaylee Lazzaro.

Mereka juga sedang menjalankan misi. Mereka mendirikan yayasan penggalangan dana untuk menutupi biaya pengobatan Riker.

“Tidak hanya untuk menyebarkan kesadaran, tapi juga untuk menggalang dana. Tidak hanya untuk dia, kami juga ingin mendonasikan persentase tertentu untuk penelitian SMA,” kata Lazaro.

Untuk pembaruan Berita, ikuti Nic Garcia di Fb, twitter Dan Instagram.

Hak Cipta © 2024 KFSN-TV. Semua hak dilindungi undang-undang.





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